Anti Stigmatization
Psychiatry Discriminates Against People with Borderline Personality Disorder
Borderline Personality Disorder (BPD) is characterized by a pattern of unstable relationships, a self-image that is always changing, and poor impulse control. The person suffering from BPD fears abandonment and will go to any lengths to prevent this, including threats of suicide. Self-harm is a characteristic.
There may be no other psychiatric diagnosis more laden with stereotypes and stigma than Borderline Personality Disorder. People who live with this label — the majority being female — often have problems accessing good mental health services. (1) Unlike the stigmatization that society puts on mental illness, the stigma associated with BPD often comes from mental health professionals and their patronizing attitudes.
Many psychiatrists will not treat BPD patients, or they may limit the number of BPD patients in their practice or drop them as ”treatment resistant.” Often attempts to treat borderlines fail, and some professionals blame the patient for not responding to treatment. (2) It is often undiagnosed, misdiagnosed, or treated inappropriately. According to Dr. Joel Dvoskin, former Commissioner of the New York State Office Of Mental Health,
“Why would psychiatry and psychology turn so viciously against people they call mentally disordered? Apparently the greatest sin a client can commit is poor response to treatment. What is apparently so wrong about these unfortunate souls is that they have yet to demonstrate the ability to get better in response to our treatment. Thus, they don’t make us feel very good. With a few notable exceptions, we have simply given up on helping people who desperately need us to do a better job of helping them.” (3)
Many mental health professionals discriminate against BPD patients because of what their co-workers have said about them. They watch other professional people “rolling their eyes” when someone mentions BPD. This is just evidence showing others that “everyone knows that people with BPD are horrible people and hard to manage”. (4)
Clients who come to services with a diagnosis of BPD “may already be disliked before they have even been seen. Clients in treatment are often embroiled in clinician attitudes which are derogatory or denying the legitimacy of their right to access resources. Studies have demonstrated clinicians having less empathy for people meeting diagnostic criteria for borderline personality disorder than other diagnostic groups and making more belittling comments.” (5)
Support services for consumers and families are woefully inadequate. The public is generally unaware of the disorder due to the lack of educational materials available from various mental health organizations. No celebrity has yet come forward to put a face on BPD, probably because BPD is the most stigmatized of all mental illnesses today. (6)
Recent research studies have demonstrated the effectiveness of individual cognitive behavioral therapy along with group psychoeducation and skills training that teach emotional regulation skills, distress tolerance, improved interpersonal relationship behaviors and awareness (mindfulness). This, combined with careful medication management, may allow the patient to achieve significant progress. (7)
Effective treatment can reduce symptoms and improve quality of life. There is also considerable short-term fluctuation in symptoms and distress, and the long-term outcome for many patients is often better than originally thought, even without treatment. (8) A fairly new psychosocial treatment termed dialectical behavior therapy (DBT) which was developed specifically to treat BPD is available. But without willing professionals, people with BPD are denied the help they need.
References
(1) Nehls, N. Issues Mental Health Nursing. “Border Personality Disorder: Gender Types, Stigma and Limited System of Care“. Abstract. Entrez PubMed.
(2) Bogod, Elizabeth. Mental Health Matters. “Borderline Personality Disorder Label Creates Stigma“.
(3) CAMI Journal on BPD, Vol 8 cited by TARA Association, “Understanding Borderline Personality Disorder“.
(4) Fleener, Patty, M.S.W. BPD Today. “Stigma and Borderline Personality Disorder“. (2002).
(5) Krawitz, Roy and Watson, Christine. Mental Health Commission Occasional Publications: No. 2. “Borderline Personality Disorder: Pathways to Effective Service Delivery and Clinical Treatment Options.” (October, 1999).
(6) Porr, Valerie. TARA Association. How Advocacy is Bringing Borderline Personality Disorder Into the Light“. (Nov. 2001).
(7) TARA Association, “Understanding Borderline Personality Disorder“.
(8) Livesley, W. John, M.D. The Canadian Journal of Psychiatry. Editorial: “Progress in the Treatment of Borderline Personality Disorder“. (July 2005).
4 Comments/Trackbacks
MedStudent
Sure, Borderlines are discriminated against by many people in the profession. I’ve heard things such as “don’t have more than two in your practice” and other things from mental health professionals. But, I have also heard of people LIKING borderlines compared to bipolars or schizophrenics because they may eventually get better with intensive therapy and medication. Of course, it takes a long time and can be frustrating. But it depends on your definition of frustrating.
I am Sue Clark Wittenberg from Ottawa, Ontario, Canada I was psychiatrized in Ontario for 18 years from 1972 to 1990.
I was given many different psychiatric labels and psychiatric medications.
I started to ask myself, what is this all about?
I decided to live without psychiatry in 1990, and for 17 years I have been
free from psychiatric wards and hospitals and psychiatric pills.
I have a huge website documenting my recovery as well as the work I do
to help end electroshock universally.
My website URL is: http://www.geocities.com/sueclark2001ca/1.html
LODI
What I just read is no new to me. I was diagnosed with BPD in 2003, at first I had no clue to what it was, as the doctor who was seeing me at the time came to the conclusion after yet another “behavioral test”. I had to find out through friends and the net. My friends were great help, most of them had suffered from depression and other psychological disorders. But when it came to my on psychiatrist, it seemed he was unwilling to learn, listen and participate. To him I was just the next patient on the daily list. Every visit, which I was paying out of my pocket as I was non insured, became even more traumatic than the disease itself. He sometimes would just go off on me because according to him; I was being difficult, and was not following his recommendations, stubborn and even stupid. I had several fights with him, because the medication he was prescribing were making me feel even worse. I was not only having emotional distress, but also my body was going through a roller coaster of gaining weight and losing weight, having no sexual desire, to becoming a maniac when it came to sex. After going through so much from the person who was suppose to help me, I finally took the matter into my own hands and asked for the director of the clinic and my social worker to be present at one of my doctors appointments. This was after I found out my own social worker, working alongside with my doctor had said at one point; Oh, Lodi is just being a drama queen as usual, do not pay much attention to what he says”. This was a betrayal of trust from both my social worker and my doctor. I still suffer from BPD and have yet to find the right combination of drugs, it doesn’t help I left the states 17 months ago, and where I live now mental health system is non existent. I must say though that Dialectical Behavior Therapy was great help for me, it gave me the tools to cope with BPD. And last but not least, I want to tell of of those reading, to never allow your doctor to become the judge and jury and executioner of you life, with time you know yourself better than any test they can perform on you, so demand for your rights, and for your voice and opinion to be heard.
Sincerely
Lodi Mirdita
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Wednesday, March 17, 2010
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Thanks for all the great information on BPD. I think it is somewhat misunderstood and I appreciate the post.