Comments on: New Treatment Option for Difficult Diseases: Chronic Fatigue Syndrome and Fibromyalgia

By: The Personality of Chronic Fatigue | Brain Blogger

The Personality of Chronic Fatigue | Brain Blogger — Fri, 22 Oct 2010 14:00:53 +0000

[…] She holds a Bachelors degree in biomedical engineering with a minor in psychology.Related ArticlesNew Treatment Option for Difficult Diseases: Chronic Fatigue Syndrome and FibromyalgiaChronic Fatigue Syndrome – A Medical MysteryChronic Fatigue Syndrome – An Inside LookThe […]

By: Bagass

Bagass — Sat, 18 Oct 2008 19:32:28 +0000

Late to the party, but gotta add some important facts to this: All of the evidence we have about altered HPA axis in CFS strongly suggests that a) it does not occur in a large fraction of patients, b) it does not occur at onset, or for some time afterwards, and c) it is only really patients with a history of early life stressors who show signs of altered HPA axis.

These, plus other bits and pieces, say clearly to me that any HPA abnormalities are probably secondary, and just reflect how stressful and distressing and costly to the patient this disorder is. Probably the only really consistent and virtually universal fact we have about CFS patients is that all the studies show they have among the lowest quality of life for any recognised disorder, including many fatal disorders prior to their final phase.

I would also add that their is currently no treatment options that produce a unambiguous good result. These patients are clearly very sick, and we do not have any good explanation or therapy to offer them.

By: Trixie M.

Trixie M. — Mon, 28 Apr 2008 03:04:21 +0000

I agree with Hague, lifestyle change is the best option. Plus, once you start on the cycle of taking medications for symptoms, as there is no cure for CFS or fibromyalgia, you cloud everything and the chances of finding the "real" problem (auto-immune disease or other) is more complicated. Go back to basics, diet, exercise, and supplements (if your doctor says okay). That is what theDiet Supplement Information Bureau recommends. Then you can get your own body at its best before tinkering with it!

By: J Hague

J Hague — Tue, 01 Apr 2008 16:50:00 +0000

Low dose cortisol treatment is not a new treatment alternative for this disease. It’s been tried and used for more than 10 years, maybe 15 or 20. Even though short term results are sometimes promising, long term results are abysmal, using oral low dose cortisol. The patient essentially crashes after some point, unless they do what all the untreated patients of this disease do …Drastically modify lifestyle to very low stress levels at all times, and staying that way for life. Cortisol or no. There’s no cure. Some drugs can ameliorate the effects of the disease, but it still limits greatly the amount of responsibility, achievement, and stress the individual can tolerate, for the rest of life.

Plenty of research and reports have been done on the low dose cortisol phenomena, of improving and then worsening the condition. For quality information on new treatments for CFS (aka CFIDS), go to http://www.immunesupport.com website or the CFIDS or CFS websites for more current reports on treatment developments, and the more in depth reporting on the use of low dose cortisol over the long term. GNIF Brain Blogger, you are sooooooooo behind the “News” in reporting this new treatment. Try again, with better information. Set the people straight. Don’t mislead them.

By: Joe

Joe — Mon, 31 Mar 2008 22:37:57 +0000

Too much calcium can cause fibromyalgia. It deposits in the muscles. And hypnosis can clear up fibromyalgia, if is is no a B vitamin deficiency, or if there no isn’t excess calcium in the muscles.