<?xml version="1.0" encoding="UTF-8"?><rss version="2.0" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:atom="http://www.w3.org/2005/Atom" xmlns:sy="http://purl.org/rss/1.0/modules/syndication/" > <channel><title>Comments on: Chronic Fatigue Syndrome – A Medical Mystery</title> <atom:link href="http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/feed/" rel="self" type="application/rss+xml" /><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/</link> <description>Topics from multidimensional biopsychosocial perspectives</description> <lastBuildDate>Thu, 09 Feb 2012 17:27:25 +0000</lastBuildDate> <sy:updatePeriod>hourly</sy:updatePeriod> <sy:updateFrequency>1</sy:updateFrequency> <generator>http://wordpress.org/?v=3.3.1</generator> <item><title>By: CSD</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-597733</link> <dc:creator>CSD</dc:creator> <pubDate>Mon, 28 Dec 2009 23:30:29 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-597733</guid> <description>I wonder how many people with CFS actually have an underlying problem with Celiac Disease.  Debilitating fatigue, muscle and joint pain, headaches, stomach and intestinal upset, and problems with memory, attention, and concentration are some of the classic but varied trademarks of this treatable, underdiagnosed autoimmune disorder.  It&#039;s certainly not the cause of everyone&#039;s problems, but I hope that more people with CFS will be screened, since almost 1% of Americans have Celiac, currently most of them don&#039;t know it, and it can look just like CFS (http://www.celiac.nih.gov/FAQ.aspx)For CFS symptoms, I hope it becomes standard practice by all physicians screen for Celiac.I developed CFS-type symptoms when I became ill with EBV mono - I was never the same in terms of energy levels, mood, and even clarity of thought.  Years later, when I developed the severe GI symptoms accociated with more progressed Celiac Disease, I was tested and diagnosed.  In my case, the stress on my body from EBV probably triggered the disease almost a decade before I was finally diagnosed.   I would love to see others get faster treatment though better screening and diagnosis.   Celiac Disease might not be everyone&#039;s silver bullet diagnosis, but it&#039;s definitley worth checking, as diagnosis and treatment could change (or save!) the life of those struggling with its vague but debilitating symptoms.</description> <content:encoded><![CDATA[<p>I wonder how many people with CFS actually have an underlying problem with Celiac Disease.  Debilitating fatigue, muscle and joint pain, headaches, stomach and intestinal upset, and problems with memory, attention, and concentration are some of the classic but varied trademarks of this treatable, underdiagnosed autoimmune disorder.  It&#8217;s certainly not the cause of everyone&#8217;s problems, but I hope that more people with CFS will be screened, since almost 1% of Americans have Celiac, currently most of them don&#8217;t know it, and it can look just like CFS (<a href="http://www.celiac.nih.gov/FAQ.aspx" rel="nofollow">http://www.celiac.nih.gov/FAQ.aspx</a>)</p><p>For CFS symptoms, I hope it becomes standard practice by all physicians screen for Celiac.</p><p>I developed CFS-type symptoms when I became ill with EBV mono &#8211; I was never the same in terms of energy levels, mood, and even clarity of thought.  Years later, when I developed the severe GI symptoms accociated with more progressed Celiac Disease, I was tested and diagnosed.  In my case, the stress on my body from EBV probably triggered the disease almost a decade before I was finally diagnosed.   I would love to see others get faster treatment though better screening and diagnosis.   Celiac Disease might not be everyone&#8217;s silver bullet diagnosis, but it&#8217;s definitley worth checking, as diagnosis and treatment could change (or save!) the life of those struggling with its vague but debilitating symptoms.</p> ]]></content:encoded> </item> <item><title>By: PostViralFatigue</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-597089</link> <dc:creator>PostViralFatigue</dc:creator> <pubDate>Fri, 20 Nov 2009 19:11:46 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-597089</guid> <description>It is possible to recover from this, I did but it took a good 3 years. My full story is on my website.</description> <content:encoded><![CDATA[<p>It is possible to recover from this, I did but it took a good 3 years. My full story is on my website.</p> ]]></content:encoded> </item> <item><title>By: ResearchBlogging.org News &#187; Blog Archive &#187; Editor&#8217;s Selections: New papers on pancreatic cancer highlight how little we know</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-557257</link> <dc:creator>ResearchBlogging.org News &#187; Blog Archive &#187; Editor&#8217;s Selections: New papers on pancreatic cancer highlight how little we know</dc:creator> <pubDate>Wed, 12 Aug 2009 15:16:23 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-557257</guid> <description>[...] Diabetes have in common?  At one point, they were both thought to be psychosomatic illnesses.  Brain Blogger examines interesting new research on the biological underpinnings of Chronic Fatigue [...]</description> <content:encoded><![CDATA[<p>[...] Diabetes have in common?  At one point, they were both thought to be psychosomatic illnesses.  Brain Blogger examines interesting new research on the biological underpinnings of Chronic Fatigue [...]</p> ]]></content:encoded> </item> <item><title>By: Steven Y. Park, MD</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-557106</link> <dc:creator>Steven Y. Park, MD</dc:creator> <pubDate>Mon, 10 Aug 2009 01:28:18 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-557106</guid> <description>Very good summary. One view of CFS is that it&#039;s a conglomeration of multiple diseases that have similar clinical features. Others are looking for that one gene, infection or biochemical imbalance that is the common pathway towards CFS.Here&#039;s one more alternate perspective: All modern humans by definition are susceptible to breathing problems at while sleeping due to our unique upper airway anatomy. Because of our ability to have complex speech and language, our upper airway is unprotected. Due to the location of our voice box below the tongue (rather than behind the tongue), the tongue can fall back easily into the oropharynx.Dr. Weston Price, in his classic book, Nutrition and Physical Degeneration, showed that modern human&#039;s jaws are much more narrow with dental crowding. This is thought to be due to a major change in our diets to processed foods and malnutrition. There&#039;s also a pretty convincing theory that bottle-feeding (another modern, Western invention) can also cause malocclusion and dental crowding.By definition, this constricts the upper airway even more. In everyone, the tongue falls back to some degree due to gravity, but when the jaw is smaller, it takes up relatively more space and the tongue can obstruct breathing when in deeper levels of sleep due to muscle relaxation. This can cause various degrees micro-obstruction and arousals, preventing you from staying in deep sleep. These obstructions are not long enough to be classified as an apnea, since you need to stop breathing for more than 10 seconds for this definition. In theory, you can stop breathing 20 times every hour and still have an apnea-hypopnea index of 0.Ultimately, these multiple obstructions and arousals causes a physiologic stress response that can lead to a relative sympathetic hyperactivity, with resulting lowering of one&#039;s thyroid and reproductive hormone function, weight gain, lowering of your pain thresholds, microscopic stokes and clotting anywhere in the body (even in the brain), amongst many others.</description> <content:encoded><![CDATA[<p>Very good summary. One view of CFS is that it&#8217;s a conglomeration of multiple diseases that have similar clinical features. Others are looking for that one gene, infection or biochemical imbalance that is the common pathway towards CFS.</p><p>Here&#8217;s one more alternate perspective: All modern humans by definition are susceptible to breathing problems at while sleeping due to our unique upper airway anatomy. Because of our ability to have complex speech and language, our upper airway is unprotected. Due to the location of our voice box below the tongue (rather than behind the tongue), the tongue can fall back easily into the oropharynx.</p><p>Dr. Weston Price, in his classic book, Nutrition and Physical Degeneration, showed that modern human&#8217;s jaws are much more narrow with dental crowding. This is thought to be due to a major change in our diets to processed foods and malnutrition. There&#8217;s also a pretty convincing theory that bottle-feeding (another modern, Western invention) can also cause malocclusion and dental crowding.</p><p>By definition, this constricts the upper airway even more. In everyone, the tongue falls back to some degree due to gravity, but when the jaw is smaller, it takes up relatively more space and the tongue can obstruct breathing when in deeper levels of sleep due to muscle relaxation. This can cause various degrees micro-obstruction and arousals, preventing you from staying in deep sleep. These obstructions are not long enough to be classified as an apnea, since you need to stop breathing for more than 10 seconds for this definition. In theory, you can stop breathing 20 times every hour and still have an apnea-hypopnea index of 0.</p><p>Ultimately, these multiple obstructions and arousals causes a physiologic stress response that can lead to a relative sympathetic hyperactivity, with resulting lowering of one&#8217;s thyroid and reproductive hormone function, weight gain, lowering of your pain thresholds, microscopic stokes and clotting anywhere in the body (even in the brain), amongst many others.</p> ]]></content:encoded> </item> <item><title>By: Ken Davis</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-557103</link> <dc:creator>Ken Davis</dc:creator> <pubDate>Sun, 09 Aug 2009 22:49:51 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-557103</guid> <description>Some good points but you really need to get up to speed on this. There&#039;s a lot more to the history and the science than you have indicated. Read Osler&#039;s Web by Hilary Johnson. Read the proceedings from the last IACFS conference. There&#039;s a lot more than 4 studies. There are thousands where the results are NOT inconclusive. The ones where the results ARE inconclusive is the Psychosomatic guff. Most of them exclude subjects who drop out - which is very convenient when you are trying to prove it is psychosomatic :-)</description> <content:encoded><![CDATA[<p>Some good points but you really need to get up to speed on this. There&#8217;s a lot more to the history and the science than you have indicated. Read Osler&#8217;s Web by Hilary Johnson. Read the proceedings from the last IACFS conference. There&#8217;s a lot more than 4 studies. There are thousands where the results are NOT inconclusive. The ones where the results ARE inconclusive is the Psychosomatic guff. Most of them exclude subjects who drop out &#8211; which is very convenient when you are trying to prove it is psychosomatic <img src='http://dna.brainblogger.com/wp-includes/images/smilies/icon_smile.gif' alt=':-)' class='wp-smiley' /></p> ]]></content:encoded> </item> <item><title>By: Annabelle</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-557007</link> <dc:creator>Annabelle</dc:creator> <pubDate>Sat, 08 Aug 2009 22:52:35 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-557007</guid> <description>A great synopsis of the history of CFS.  It&#039;s wonderful that people are being educated about this debilitating illness.  Thank you for spreading the word.Annabelle</description> <content:encoded><![CDATA[<p>A great synopsis of the history of CFS.  It&#8217;s wonderful that people are being educated about this debilitating illness.  Thank you for spreading the word.</p><p>Annabelle</p> ]]></content:encoded> </item> <item><title>By: William Lu</title><link>http://brainblogger.com/2009/08/08/chronic-fatigue-syndrome-%e2%80%93-a-medical-mystery/#comment-556899</link> <dc:creator>William Lu</dc:creator> <pubDate>Sat, 08 Aug 2009 21:27:47 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=3145#comment-556899</guid> <description>I wonder if the sleep disturbances experienced by CFS patients contribute to their cognitive deficits and pain as well. It seems like CFS patients share similar symptoms to that of Fibromyalgia syndrome patients. An interesting study by Lentz, Landis, Rothermel, and Shaver (1999) found that disrupting SWS in healthy female subjects for several consecutive nights led to symptoms of FMS. Other studies have suggested an association between a good nights rest and cognitive performance.Reference: Lentz, M. J., Landis, C. A., Rothermel, J., &amp; Shaver, J. F. L. (1999). Effects of selective slow-wave sleep stage disruption on musculoskeletal pain and fatigue in middle-aged women. The Journal of Rheumatology, 26, 1586-1592.</description> <content:encoded><![CDATA[<p>I wonder if the sleep disturbances experienced by CFS patients contribute to their cognitive deficits and pain as well. It seems like CFS patients share similar symptoms to that of Fibromyalgia syndrome patients. An interesting study by Lentz, Landis, Rothermel, and Shaver (1999) found that disrupting SWS in healthy female subjects for several consecutive nights led to symptoms of FMS. Other studies have suggested an association between a good nights rest and cognitive performance.</p><p>Reference:<br /> Lentz, M. J., Landis, C. A., Rothermel, J., &amp; Shaver, J. F. L. (1999). Effects of selective slow-wave sleep stage disruption on musculoskeletal pain and fatigue in middle-aged women. The Journal of Rheumatology, 26, 1586-1592.</p> ]]></content:encoded> </item> </channel> </rss>
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