Comments on: Personal Health Records and Mental Health http://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/ Topics from multidimensional biopsychosocial perspectives Thu, 09 Feb 2012 17:27:25 +0000 hourly 1 http://wordpress.org/?v=3.3.1 By: Joyful Dayshttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-617028 Joyful Days Thu, 12 Jan 2012 10:29:12 +0000 http://brainblogger.com/?p=2081#comment-617028 [...] link from the Carnival of Personal Development Edition 3: Brain Blogger presents Personal Health Records and Mental Health posted at Brain Blogger. If you like this post please share it using the button above, thanks! [...] [...] link from the Carnival of Personal Development Edition 3: Brain Blogger presents Personal Health Records and Mental Health posted at Brain Blogger. If you like this post please share it using the button above, thanks! [...]

]]> By: Timothy Keenhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-414624 Timothy Keen Wed, 21 Jan 2009 10:55:23 +0000 http://brainblogger.com/?p=2081#comment-414624 PHR (Personal Health Record) is an invaluable tool for tracking vital records and creating a medical history of your general health over time. Maintaining good health is too important to ignore, and this personal health record is an easy to use portable health care supplement. Foods supplement Proleva controls my PHRs and maintain unwavering. I ordered online at www.proleva.com 10-day trial pack. PHR (Personal Health Record) is an invaluable tool for tracking vital records and creating a medical history of your general health over time. Maintaining good health is too important to ignore, and this personal health record is an easy to use portable health care supplement. Foods supplement Proleva controls my PHRs and maintain unwavering. I ordered online at http://www.proleva.com 10-day trial pack.

]]> By: Rich Life Carnivalhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-403816 Rich Life Carnival Sat, 10 Jan 2009 05:42:49 +0000 http://brainblogger.com/?p=2081#comment-403816 <strong>Rich Life Carnival #24...</strong>Welcome to the 24th edition of rich life carnival.Healthy Living Alvin Hopkinson presents Relief From Gout - How to Gain Comfort posted at Relief From Gout - How to Gain Comfort, saying, “Depending on the severity of the gout there are dif... Rich Life Carnival #24…

Welcome to the 24th edition of rich life carnival.

Healthy Living
Alvin Hopkinson presents Relief From Gout – How to Gain Comfort posted at Relief From Gout – How to Gain Comfort, saying, “Depending on the severity of the gout there are dif…

]]> By: Carnival of Personal Development Edition #3 | Joyful Dayshttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-399841 Carnival of Personal Development Edition #3 | Joyful Days Tue, 06 Jan 2009 06:22:29 +0000 http://brainblogger.com/?p=2081#comment-399841 [...] Blogger presents Personal Health Records and Mental Health posted at Brain Blogger: Personal health records or PHRs are becoming more and more popular these [...] [...] Blogger presents Personal Health Records and Mental Health posted at Brain Blogger: Personal health records or PHRs are becoming more and more popular these [...]

]]> By: Daphnehttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-398694 Daphne Mon, 05 Jan 2009 05:23:48 +0000 http://brainblogger.com/?p=2081#comment-398694 I found this an excellent post on a very professional blog, and have selected it as an Editor's Pick in the latest <a href="http://www.joyfuldays.com/2009/01/carnival-of-personal-development-edition-3/" rel="nofollow">Carnival of Personal Development (Edition 3)</a>. Great job spreading awareness of PHRs and getting people to think about how far this should go. I found this an excellent post on a very professional blog, and have selected it as an Editor’s Pick in the latest Carnival of Personal Development (Edition 3). Great job spreading awareness of PHRs and getting people to think about how far this should go.

]]> By: Sonya Lazarevic MDhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-387904 Sonya Lazarevic MD Tue, 23 Dec 2008 15:17:59 +0000 http://brainblogger.com/?p=2081#comment-387904 As mentioned earlier, having information online available for MD's caring for John/Jane Doe is not effective until a patient can tell you who they are (verbally or via ID), this of course depends on the information being accurate (not an alias).Only when online personal medical information is held to the same standard of privacy as medical records in a hospital, and same security as bank accounts, would I ever subscribe to it. As mentioned by other comments, its important to examine whom this service is intended to serve. As mentioned earlier, having information online available for MD’s caring for John/Jane Doe is not effective until a patient can tell you who they are (verbally or via ID), this of course depends on the information being accurate (not an alias).

Only when online personal medical information is held to the same standard of privacy as medical records in a hospital, and same security as bank accounts, would I ever subscribe to it. As mentioned by other comments, its important to examine whom this service is intended to serve.

]]> By: Christian Kleineidamhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-386940 Christian Kleineidam Mon, 22 Dec 2008 13:39:47 +0000 http://brainblogger.com/?p=2081#comment-386940 DNA is private information. If you know height, weight, eyecolor, haircolor and hundreds of other factors about a person you might identify them without knowing their name.In addition someone might run a DNA test against a person he knows in a 1000$ DNA test world to be able to access their medical records (you don't even need to know the whole DNA).You can't really depersonalize DNA without losing valuable information.There will be people who want to use every information available and use supercomputers with very complex algorithms to learn something from the data and compare how hundreds of variables influence each other. DNA is private information.
If you know height, weight, eyecolor, haircolor and hundreds of other factors about a person you might identify them without knowing their name.

In addition someone might run a DNA test against a person he knows in a 1000$ DNA test world to be able to access their medical records (you don’t even need to know the whole DNA).

You can’t really depersonalize DNA without losing valuable information.

There will be people who want to use every information available and use supercomputers with very complex algorithms to learn something from the data and compare how hundreds of variables influence each other.

]]> By: Joseph Kim, MD, MPHhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-383114 Joseph Kim, MD, MPH Thu, 18 Dec 2008 15:20:33 +0000 http://brainblogger.com/?p=2081#comment-383114 Data mining is often done for the purposes of aggregate reporting. All the private health information is depersonalized, and this information is often evaluated by managed care plans and other interested parties such as pharma/biotech interested in market research. Data mining is often done for the purposes of aggregate reporting. All the private health information is depersonalized, and this information is often evaluated by managed care plans and other interested parties such as pharma/biotech interested in market research.

]]> By: Sajid Surve, DOhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-382027 Sajid Surve, DO Wed, 17 Dec 2008 20:08:38 +0000 http://brainblogger.com/?p=2081#comment-382027 Christian-The potential for research is definitely huge if we were to get all this health information online, but a simple solution would be to only allow data-mining to be done in aggregate, with individual personal identifying information stripped away. The same sort of database already exists for the spinal cord injured and traumatic brain injured populations in Europe, as well as in the United States with the Framingham database for the study of heart disease. Christian-

The potential for research is definitely huge if we were to get all this health information online, but a simple solution would be to only allow data-mining to be done in aggregate, with individual personal identifying information stripped away. The same sort of database already exists for the spinal cord injured and traumatic brain injured populations in Europe, as well as in the United States with the Framingham database for the study of heart disease.

]]> By: Christian Kleineidamhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-381908 Christian Kleineidam Wed, 17 Dec 2008 14:54:27 +0000 http://brainblogger.com/?p=2081#comment-381908 I think that the key question is about the extent in which we will allow someone to do data-mining on those records. In a few years we will get DNA testing for very low prices that allow us to have the DNA for a lot of people in those online records. There is a huge interest for people who are searching which gene variations have which effects to get access to those big data sets which index millions of people.The commercial interest to data-mine those records is too big to expect people to completely stay away from that attempting to data-mine. One we have those big data sets it might become easy for some lobbyists in Washington to promise to be able to cure cancers if they can use those huge data sets to increase our knowledge about cancer.We need to have a discussion about what privacy entails and the price that we are willing to pay for the privacy. We need to know both the monetary price and the number of deaths that we are willing to allow to occur by not doing more radical data-mining to increase our knowledge of the human body. I think that the key question is about the extent in which we will allow someone to do data-mining on those records.
In a few years we will get DNA testing for very low prices that allow us to have the DNA for a lot of people in those online records.
There is a huge interest for people who are searching which gene variations have which effects to get access to those big data sets which index millions of people.

The commercial interest to data-mine those records is too big to expect people to completely stay away from that attempting to data-mine.
One we have those big data sets it might become easy for some lobbyists in Washington to promise to be able to cure cancers if they can use those huge data sets to increase our knowledge about cancer.

We need to have a discussion about what privacy entails and the price that we are willing to pay for the privacy. We need to know both the monetary price and the number of deaths that we are willing to allow to occur by not doing more radical data-mining to increase our knowledge of the human body.

]]> By: Doug Edwardshttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-380694 Doug Edwards Tue, 16 Dec 2008 14:31:28 +0000 http://brainblogger.com/?p=2081#comment-380694 Behavioral Healthcare magazine had a special section on PHRs over the summer. See (it's a long link): http://www.behavioral.net/ME2/dirmod.asp?sid=9B6FFC446FF7486981EA3C0C3CCE4943&nm=Archives&type=Publishing&mod=Publications%3A%3AArticle&mid=64D490AC6A7D4FE1AEB453627F1A4A32&tier=2&did=6F59AF9C1DD84FE691FE6DB7476CA209&dtxt=August+2008 Behavioral Healthcare magazine had a special section on PHRs over the summer. See (it’s a long link): http://www.behavioral.net/ME2/dirmod.asp?sid=9B6FFC446FF7486981EA3C0C3CCE4943&nm=Archives&type=Publishing&mod=Publications%3A%3AArticle&mid=64D490AC6A7D4FE1AEB453627F1A4A32&tier=2&did=6F59AF9C1DD84FE691FE6DB7476CA209&dtxt=August+2008

]]> By: Frontier Psychiatristhttp://brainblogger.com/2008/12/15/personal-health-records-and-mental-health/#comment-379894 Frontier Psychiatrist Mon, 15 Dec 2008 21:19:18 +0000 http://brainblogger.com/?p=2081#comment-379894 Finding out what has been prescribed to a patient is one thing. The other is to find out what he's actually taking. There might be a substantial difference. Of course sometimes I'd like to hack into some drug history database, to find out which brand the obscure little red pills might be.From my point of view, health IT often is designed to satisfy administrators, not doctors. And huge collections of personal data offer greatest benefit for administrators and companies, not doctors. Not to mention patients.What was the point in looking for data on John Doe who neither can remember his name, nor his 11-digit access code, again? Finding out what has been prescribed to a patient is one thing. The other is to find out what he’s actually taking. There might be a substantial difference. Of course sometimes I’d like to hack into some drug history database, to find out which brand the obscure little red pills might be.

From my point of view, health IT often is designed to satisfy administrators, not doctors. And huge collections of personal data offer greatest benefit for administrators and companies, not doctors. Not to mention patients.

What was the point in looking for data on John Doe who neither can remember his name, nor his 11-digit access code, again?

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