<?xml version="1.0" encoding="UTF-8"?><rss version="2.0" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:atom="http://www.w3.org/2005/Atom" xmlns:sy="http://purl.org/rss/1.0/modules/syndication/" > <channel><title>Comments on: Living with Traumatic Brain Injury</title> <atom:link href="http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/feed/" rel="self" type="application/rss+xml" /><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/</link> <description>Topics from multidimensional biopsychosocial perspectives</description> <lastBuildDate>Tue, 07 Feb 2012 18:44:48 +0000</lastBuildDate> <sy:updatePeriod>hourly</sy:updatePeriod> <sy:updateFrequency>1</sy:updateFrequency> <generator>http://wordpress.org/?v=3.3.1</generator> <item><title>By: Kevan Henson</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-604203</link> <dc:creator>Kevan Henson</dc:creator> <pubDate>Sun, 15 May 2011 15:39:19 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-604203</guid> <description>I have lived with a T.B.I.for the past 42 years, In April of next year it will be 43 years since I fell while mountain climbing in Colorado. This is an excellant description of the physical mountains that have to be climed; but I will tell you about the emotional mountains that have to be climed as well.I have been diagnosed with multiple personality disorder and apost-traumatic-stress-disorder. These limit my social life,the jobs that I am limited to, and my personal life as well. I used to go through therapista like a 12 year old boy go through G.I.Joes.I suffer from depression,frustration,anxiety,and anger on a mega scale.  the only reason I haven&#039;t blown my brains out is because I have let Jesus Christ into my life.He made a promise to me that he would return and rescue me from my disabilities. He is the good shepard.When he calls I will follow him into the land that is free of sin. Heaven and earth are going to be one again.God will set up his kingdom in Juruselem and I will be there to watch it all happen.With this knowledge behind me,I just do what I can do and I let Jesus Christ handle what I can&#039;t handle. every day I ask Him for the forgiveness of my sins and he in his infinate mercy will forgive me-Amen!</description> <content:encoded><![CDATA[<p>I have lived with a T.B.I.for the past 42 years, In April of next year it will be 43 years since I fell while mountain climbing in Colorado. This is an excellant description of the physical mountains that have to be climed; but I will tell you about the emotional mountains that have to be climed as well.</p><p>I have been diagnosed with multiple personality disorder and apost-traumatic-stress-disorder. These limit my social life,the jobs that I am limited to, and my personal life as well. I used to go through therapista like a 12 year old boy go through G.I.Joes.I suffer from depression,frustration,anxiety,and anger on a mega scale.  the only reason I haven&#8217;t blown my brains out is because I have let Jesus Christ into my life.He made a promise to me that he would return and rescue me from my disabilities. He is the good shepard.When he calls I will follow him into the land that is free of sin. Heaven and earth are going to be one again.God will set up his kingdom in Juruselem and I will be there to watch it all happen.</p><p>With this knowledge behind me,I just do what I can do and I let Jesus Christ handle what I can&#8217;t handle. every day I ask Him for the forgiveness of my sins and he in his infinate mercy will forgive me-Amen!</p> ]]></content:encoded> </item> <item><title>By: sean</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-601196</link> <dc:creator>sean</dc:creator> <pubDate>Mon, 30 Aug 2010 16:15:21 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-601196</guid> <description>hi i am 41 now but had a mva at 34,doctors tell me i will never be the same(i have found this to be true) i battle around crowds and cant do any work as i get a feeling in my head i cant explain-its like a cloud covers everything and i get mad and want to smash things and more. is there anyone else out there with these problems and more. please come back to me regards sean - south africa</description> <content:encoded><![CDATA[<p>hi<br /> i am 41 now but had a mva at 34,doctors tell me i will never be the same(i have found this to be true)<br /> i battle around crowds and cant do any work as i get a feeling in my head i cant explain-its like a cloud covers everything and i get mad and want to smash things and more.<br /> is there anyone else out there with these problems and more.<br /> please come back to me<br /> regards<br /> sean &#8211; south africa</p> ]]></content:encoded> </item> <item><title>By: Kevan</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-600762</link> <dc:creator>Kevan</dc:creator> <pubDate>Tue, 22 Jun 2010 04:27:02 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-600762</guid> <description>The one thing that families must understand is that it will take an individual who has suffered a tbi a certain amount of time to get to know and like themselves again.When they start to critizise them for everything that they do,it is going to take them longer to make this transition.Families must be very passive in their conversations with them.They must do everything in their power to make the individual as comfortable with themselves as they possibly can.Kevan</description> <content:encoded><![CDATA[<p>The one thing that families must understand is that it will take an individual who has suffered a tbi a certain amount of time to get to know and like themselves again.When they start to critizise them for everything that they do,it is going to take them longer to make this transition.Families must be very passive in their conversations with them.They must do everything in their power to make the individual as comfortable with themselves as they possibly can.</p><p>Kevan</p> ]]></content:encoded> </item> <item><title>By: denise</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-600749</link> <dc:creator>denise</dc:creator> <pubDate>Mon, 21 Jun 2010 02:15:02 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-600749</guid> <description>My husband is @ the 3 1/2 year mark of tbi. Its a rough journey. If anyone would like to discuss tbi, recovery, etc, please email me denisebryant40@yahoo.com.</description> <content:encoded><![CDATA[<p>My husband is @ the 3 1/2 year mark of tbi. Its a rough journey.<br /> If anyone would like to discuss tbi, recovery, etc, please email<br /> me <a href="mailto:denisebryant40@yahoo.com">denisebryant40@yahoo.com</a>.</p> ]]></content:encoded> </item> <item><title>By: Kevan Henson</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-600585</link> <dc:creator>Kevan Henson</dc:creator> <pubDate>Thu, 10 Jun 2010 12:08:14 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-600585</guid> <description>I fell while mountain climbing in Colorado when I was 17 years old leaving me  with a severe tbi.I have had to live over 41 years with the effects of it.Please write to me and and togeather,with Christs help,we can help each other through this ungodly mess.My E-mail address is meowglick1@msn.com.Please write.</description> <content:encoded><![CDATA[<p>I fell while mountain climbing in Colorado when I was 17 years old leaving me  with a severe tbi.I have had to live over 41 years with the effects of it.Please write to me and and togeather,with Christs help,we can help each other through this ungodly mess.My E-mail address is <a href="mailto:meowglick1@msn.com.Please">meowglick1@msn.com.Please</a> write.</p> ]]></content:encoded> </item> <item><title>By: Kevan Henson</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-600584</link> <dc:creator>Kevan Henson</dc:creator> <pubDate>Thu, 10 Jun 2010 11:57:13 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-600584</guid> <description>One of the things I have had to learn is how to get to know and like myself again.With the post-traumatic-stress-syndrome that I have been diagnosed with,it took me several years to get to know myself,and to like myself again.I have finally found a gifted therapist who has given me the ability to finally accept and like myself again.If anyone else out there is going through the same problem-please write-Kevan</description> <content:encoded><![CDATA[<p>One of the things I have had to learn is how to get to know and like myself again.With the post-traumatic-stress-syndrome that I have been diagnosed with,it took me several years to get to know myself,and to like myself again.I have finally found a gifted therapist who has given me the ability to finally accept and like myself again.</p><p>If anyone else out there is going through the same problem-please write-Kevan</p> ]]></content:encoded> </item> <item><title>By: Anonymous</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-598219</link> <dc:creator>Anonymous</dc:creator> <pubDate>Tue, 16 Mar 2010 04:48:32 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-598219</guid> <description>It&#039;s been almost 25 years since my son suffered a TBI in an accident. He was only 7 at the time and because of his age recovered more than an older person would have. Yet... the boy that finally, slowly emerged over six months from that coma was certainly not the one I knew before.He and I both know that he owes his life to the lucky circumstance that someone who knew CPR was on the scene immediately. He was not breathing and an unknown portion of his deficits now are due to lack of oxygen as well as the twisting injury to his brain stem and other contrecoup injuries.What has been the most frustrating for him is the lack of brain injury specific treatments. He got the best treatment available at the time and in so many ways it was miraculous. Yet, as an adult now, he is not treated as a TBI patient, but as a psychiatric patient. And far to many psychiatric treatments are too closely tied with drug abuse.His physical problems such as painful spasms are essentially ignored. A few doctors recognize that constant physical pain is a problem, but because his injuries mimic certain psychiatric diagnoses, they also refuse simple pain treatment... for fear of drug abuse.Though so many suffer TBI, there is not (that I can see) a medical ideology to deal with these injuries outside of psychiatric treatment. Psychotropic drugs are powerful and they can induce mania... and the mania they induce triggers a diagnosis of bipolar... which involves -- for the TBI patient -- an artificial diagnosis of the self-fulfilling type.Over the years, my son has been diagnosed with so many different things. A few doctors were honest enough to tell us that their diagnosis depended on whether insurance would pay for treatment or not. Others honestly thought he was suffering from one DSM problem or another.The one thing that confuses me is that though the very first CT scan my son had showed that his substantia nigra -- an important part of the brain in producing dopamine -- was destroyed, that no one, even those we&#039;ve begged to look at that, have taken us seriously that a dopamine deficiency is a huge part of his problem.Anyway... I keep reading and I keep suggesting and hoping that researchers will eventually look at injuries separately from &quot;inborn&quot; problems. I&#039;ve no doubt they are related and I&#039;ve also no doubt that taking a look from a different perspective will help those suffering from either or both.</description> <content:encoded><![CDATA[<p>It&#8217;s been almost 25 years since my son suffered a TBI in an accident. He was only 7 at the time and because of his age recovered more than an older person would have. Yet&#8230; the boy that finally, slowly emerged over six months from that coma was certainly not the one I knew before.</p><p>He and I both know that he owes his life to the lucky circumstance that someone who knew CPR was on the scene immediately. He was not breathing and an unknown portion of his deficits now are due to lack of oxygen as well as the twisting injury to his brain stem and other contrecoup injuries.</p><p>What has been the most frustrating for him is the lack of brain injury specific treatments. He got the best treatment available at the time and in so many ways it was miraculous. Yet, as an adult now, he is not treated as a TBI patient, but as a psychiatric patient. And far to many psychiatric treatments are too closely tied with drug abuse.</p><p>His physical problems such as painful spasms are essentially ignored. A few doctors recognize that constant physical pain is a problem, but because his injuries mimic certain psychiatric diagnoses, they also refuse simple pain treatment&#8230; for fear of drug abuse.</p><p>Though so many suffer TBI, there is not (that I can see) a medical ideology to deal with these injuries outside of psychiatric treatment. Psychotropic drugs are powerful and they can induce mania&#8230; and the mania they induce triggers a diagnosis of bipolar&#8230; which involves &#8212; for the TBI patient &#8212; an artificial diagnosis of the self-fulfilling type.</p><p>Over the years, my son has been diagnosed with so many different things. A few doctors were honest enough to tell us that their diagnosis depended on whether insurance would pay for treatment or not. Others honestly thought he was suffering from one DSM problem or another.</p><p>The one thing that confuses me is that though the very first CT scan my son had showed that his substantia nigra &#8212; an important part of the brain in producing dopamine &#8212; was destroyed, that no one, even those we&#8217;ve begged to look at that, have taken us seriously that a dopamine deficiency is a huge part of his problem.</p><p>Anyway&#8230; I keep reading and I keep suggesting and hoping that researchers will eventually look at injuries separately from &#8220;inborn&#8221; problems. I&#8217;ve no doubt they are related and I&#8217;ve also no doubt that taking a look from a different perspective will help those suffering from either or both.</p> ]]></content:encoded> </item> <item><title>By: Traumatic Brain Injury</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-555578</link> <dc:creator>Traumatic Brain Injury</dc:creator> <pubDate>Thu, 23 Jul 2009 22:21:49 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-555578</guid> <description>It&#039;s incredible the toll that traumatic brain injury has on peoples lives. Not only the person who actually sustained the TBI but the family member who ends up being the caregiver. Thanks for sharing this personal story, it&#039;s through these stories that it helps others understand a little bit better what life is like living with a traumatic brain injury.</description> <content:encoded><![CDATA[<p>It&#8217;s incredible the toll that traumatic brain injury has on peoples lives. Not only the person who actually sustained the TBI but the family member who ends up being the caregiver. Thanks for sharing this personal story, it&#8217;s through these stories that it helps others understand a little bit better what life is like living with a traumatic brain injury.</p> ]]></content:encoded> </item> <item><title>By: judith</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-345545</link> <dc:creator>judith</dc:creator> <pubDate>Sat, 08 Nov 2008 12:47:29 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-345545</guid> <description>My mum has dementia, and although unlike TBI it came on over a prolonged period, the effect is still the same. The person you knew, who loved and raised you, doesn&#039;t even know who you are. The other day she accused my sister of chatting up my dad and trying to steal him from her. It&#039;s actually my dad who I feel most sorry for. He has lost his wife, his soul mate. It breaks his heart to see her like this. They will have been married for 67 years at the end of this month. Life can be very cruel.</description> <content:encoded><![CDATA[<p>My mum has dementia, and although unlike TBI it came on over a prolonged period, the effect is still the same. The person you knew, who loved and raised you, doesn&#8217;t even know who you are. The other day she accused my sister of chatting up my dad and trying to steal him from her.<br /> It&#8217;s actually my dad who I feel most sorry for. He has lost his wife, his soul mate. It breaks his heart to see her like this. They will have been married for 67 years at the end of this month. Life can be very cruel.</p> ]]></content:encoded> </item> <item><title>By: Mike</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-310724</link> <dc:creator>Mike</dc:creator> <pubDate>Thu, 18 Sep 2008 03:08:14 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-310724</guid> <description>Very good article.  I&#039;m 7+ years into it with my wife.  I just began my 1st blog ever.  Feel free to check it out.  There&#039;s so much we&#039;ve been through and as blessed as I am to still have her with me...that &quot;statue without the character&quot; remark is like, &#039;wow.&#039;  My wife is still very much here, but had it not been for some miracle medication, those wild mood swings you discussed, were truly taking their toll on me and our youngest son.  I&#039;m bookmarking your page and will be checking out other articles from you.  Thanks.</description> <content:encoded><![CDATA[<p>Very good article.  I&#8217;m 7+ years into it with my wife.  I just began my 1st blog ever.  Feel free to check it out.  There&#8217;s so much we&#8217;ve been through and as blessed as I am to still have her with me&#8230;that &#8220;statue without the character&#8221; remark is like, &#8216;wow.&#8217;  My wife is still very much here, but had it not been for some miracle medication, those wild mood swings you discussed, were truly taking their toll on me and our youngest son.  I&#8217;m bookmarking your page and will be checking out other articles from you.  Thanks.</p> ]]></content:encoded> </item> <item><title>By: Lalitha Shankar</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-262368</link> <dc:creator>Lalitha Shankar</dc:creator> <pubDate>Wed, 23 Jul 2008 01:12:02 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-262368</guid> <description>That was a wonderful article ,Its an eye opener for those of us who think think we are going throgh hell,nurturing just a &#039;flu</description> <content:encoded><![CDATA[<p>That was a wonderful article ,Its an eye opener for those of us who think think we are going throgh hell,nurturing just a &#8216;flu</p> ]]></content:encoded> </item> <item><title>By: Lars O'Reilly</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-253190</link> <dc:creator>Lars O'Reilly</dc:creator> <pubDate>Tue, 15 Jul 2008 20:54:53 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-253190</guid> <description>This is a good article. I was invited to comment on it by Kelly. I&#039;m from Ireland, living in the south of the country in a town called Wexford. I had a stroke at the age of 35 for no aparent reason. At least none that doctors could find. It&#039;s just pure rotten luck.While a stroke may not be considered a TBI by some (it&#039;s called an Aquired Brain Injury or ABI) believe me when I say that for all that, it&#039;s traumatic none the less. The disruption is real, the disabities are real, the guilt and loss are real.Keep putting the message out there as I will. Eventually someone will take notice of the fact that this is a very very virulent and frequent disease.Lars.</description> <content:encoded><![CDATA[<p>This is a good article. I was invited to comment on it by Kelly. I&#8217;m from Ireland, living in the south of the country in a town called Wexford. I had a stroke at the age of 35 for no aparent reason. At least none that doctors could find. It&#8217;s just pure rotten luck.</p><p>While a stroke may not be considered a TBI by some (it&#8217;s called an Aquired Brain Injury or ABI) believe me when I say that for all that, it&#8217;s traumatic none the less. The disruption is real, the disabities are real, the guilt and loss are real.</p><p>Keep putting the message out there as I will. Eventually someone will take notice of the fact that this is a very very virulent and frequent disease.</p><p>Lars.</p> ]]></content:encoded> </item> <item><title>By: Amy</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-253138</link> <dc:creator>Amy</dc:creator> <pubDate>Tue, 15 Jul 2008 19:49:35 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-253138</guid> <description>As someone I know put it: it&#039;s like the statue of the person is there, but the character has changed. This can be so hard to adjust to, which is why skilled professionals are so priceless. Here&#039;s an article on coping with TBI that might help.</description> <content:encoded><![CDATA[<p>As someone I know put it: it&#8217;s like the statue of the person is there, but the character has changed. This can be so hard to adjust to, which is why skilled professionals are so priceless. Here&#8217;s an article on coping with TBI that might help.</p> ]]></content:encoded> </item> <item><title>By: Craig J. Phillips MRC, BA</title><link>http://brainblogger.com/2008/07/14/living-with-traumatic-brain-injury/#comment-253093</link> <dc:creator>Craig J. Phillips MRC, BA</dc:creator> <pubDate>Tue, 15 Jul 2008 18:17:15 +0000</pubDate> <guid isPermaLink="false">http://brainblogger.com/?p=1046#comment-253093</guid> <description>Great article. Comprehensive. Resourceful. Thank you for making the information available to the online community.Have a simply amazing rest of your day and God bless you!Craig</description> <content:encoded><![CDATA[<p>Great article. Comprehensive. Resourceful. Thank you for making the information available to the online community.</p><p>Have a simply amazing rest of your day and God bless you!</p><p>Craig</p> ]]></content:encoded> </item> </channel> </rss>
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