Since my brain injuries some years ago, I have encountered many people with shockingly similar stories about how they have been neglected, shunned, misdiagnosed, not-diagnosed, and mistreated by various people, healing practitioners, and public institutions. It is essential to get all the information and support you can from every possible angle. See if there is any kind of supportive community, such as through the Brain Injury Foundation, that can help. The number of people affected is immense, but they are generally poor self advocates for a lot of reasons. This means they must focus as much as possible on mustering support and educating others about what to expect instead of leaving things to others’ imaginations, where stigma easily grows.